Data by the People, for the People?

The Human Genome project carved out a new frontier of democratized data, bringing with it a legion of ethical questions.

In The Postgenomic Condition, Jenny Reardon tracks genomics’s evolution to “a more participatory and diverse venture,” writes Rosario Isasi. In the process DNA data—an important resource—has fallen foul to what Reardon calls “the corporate corruption of science.”

Reardon uses “worst-case scenarios to demonstrate the complexities of human genomics.” But she focuses more on political theory than practical suggestions, Isasi writes—in so doing, she ignores key medical advances of genomics, like gene and cancer therapies—a “major shortcoming.”


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