The Struggle for Sickle Cell Care

While life expectancy has increased for many major illnesses, the same cannot be said for sickle cell disease, which affects 100,000 people in the US, mostly African Americans.
Discrimination in the health care system and limited access to appropriate care prevent people with sickle cell from living longer, healthier lives.
Although specialty clinics have helped increase life expectancy for some sickle cell patients into their 60s, access is sorely limited. "I would say 40% or more of the deaths I've had recently have been preventable—I mean totally preventable," says Elliott Vichinsky, founder of UCSF Benioff Children's Hospital Oakland’s sickle cell center.
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