The Dark Side of Data Collection

When the CDC launched an ambitious plan in 2019 to reduce HIV infections by 90% by 2030, a technological advance at the centerpiece raised red flags.
 
Activists and advocates felt blindsided by the plan’s reliance on a new data collection program—dubbed molecular surveillance, or the CDC’s preferred phrase, molecular analysis—which they fear police and prosecutors could misuse in states that still criminalize the spread of HIV. The technology shouldn’t be used, they said, without new protections for HIV-positive people, such as assurances that police and prosecutors can’t get the data.
 
The CDC stance: The pros of collecting the information—with the potential to detect and block new outbreak clusters as they unfold—outweighs the risk.
 
What’s key, says Amy Killelea, former senior director of health systems and policy for the National Alliance of State and Territorial AIDS Directors, is “getting HIV criminalization laws off the books”—as the state of Illinois did in July.
 
Undark
 

Related: 
 
Addition of HIV self-test kits to partner notification services to increase HIV testing of male partners of pregnant women in Zambia: two parallel randomised trials – The Lancet Global Health
 
Five questions about the HIV response in the Gambia – UNAIDS 
 
People living with HIV should be routinely asked about domestic abuse – aidsmap

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